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Tuesday, April 10, 2012 |
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Tampa Bound NEXT WEEK!!! Brady will be participating in the Minocycline Clinical Trial! This could potentially change his and many other's lives for the better. Keeping all fingers and toes crossed! Saying lots of prayers for him and all our other Angels. Go Tampa 24!! Please keep all our families in your thoughts and prayers over the next several months. This is only the beginning of an amazing journey! Thank you, to all who have made it possible! |
posted by angelwings
@
12:45 AM
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6 Comments: |
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How exciting!!! I have been following your blog for a while but never post.(bad me) WE will be praying for you and your family. Can't wait to hear all your reports. Good Luck.
The Black Family
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Thank you so much for participating in the trial. Our angel, Scarlett, is too young to participate. Good luck to the Tampa 24!
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Thank you so much for participating in this trial! I also have never posted before but follow your wonderful blog. I have a young Angel and wait with much anticipation to hear how the study is going in the weeks to come! Fingers crossed!
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Dear Brady, family and friends,
We hope that this trial will be a huge success for Brady and the other 23 kids, and that our son Huub, now 18 months old, will also benefit sometime in the near future.
All our love and support, Klein family, The Netherlands
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Dear Brady and Family,
I am wondering how things are going for you after the first visit to Tampa? I live in Tampa and we came across this story via Spain, as my husband is from Barcelona. We have decided to open up our home to one of the Tampa 24, Candela and her family from Spain because of the economic crisis happening in Spain and my husband's connection to home. I find it absurd that I had to hear about this groundbreaking study from Spain, yet nothing about it in Tampa! Please advise us what to expect being a host family and other ways we can help ALL the families. This clinical trial needs more publicity and awareness from our own country. How can we accomplish that? Please feel free to contact me at lissa_6626@yahoo.com. Best of luck to Brady as well as all of the Tampa 24! ~Melissa & Edgar
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Dear Brady and Family,
I am wondering how things are going for you after the first visit to Tampa? I live in Tampa and we came across this story via Spain, as my husband is from Barcelona. We have decided to open up our home to one of the Tampa 24, Candela and her family from Spain because of the economic crisis happening in Spain and my husband's connection to home. I find it absurd that I had to hear about this groundbreaking study from Spain, yet nothing about it in Tampa! Please advise us what to expect being a host family and other ways we can help ALL the families. This clinical trial needs more publicity and awareness from our own country. How can we accomplish that? Please feel free to contact me at lissa_6626@yahoo.com. Best of luck to Brady as well as all of the Tampa 24! ~Melissa & Edgar
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About Brady |
Read Brady's Story Here
I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day.
My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.
See my complete profile
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How exciting!!! I have been following your blog for a while but never post.(bad me)
WE will be praying for you and your family. Can't wait to hear all your reports. Good Luck.
The Black Family