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Monday, February 09, 2009 |
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We've been getting behind in our posts, so I'm going to try and do better in the future :)
Brady is doing great. His sleeping is slowly improving, thank goodness! He has had a great weekend, been outside a lot. He had a Popsicle and some blue gum today, so mix that with the dirt, and he looked a site,lol. He loves being outside, when the weather agrees. He jumped on the trampoline with big brother today, they both love that.
Yesterday we had a fire in the fire pit outside, and Brady decided that he should go over and stick his hands in the fire! Thank goodness his brother was close by and able to stop him before he succeeded. It amazes me, but even more so, scares me to death, that he is totally fearless. He is very cautious about eating food that is the least bit warm, but yet he doesn't mind sticking his hands in a fire! He is learning to actually play and run around the yard now. Where as before he wanted to sit on us or on his Maw Maw, the entire time. His brother had company this weekend, and Brady played on the swings with them. Its so exciting to see Brady interacting with other kids, he almost seems typical at times. He really is growing up.
He is a busy boy these days, opening doors, climbing in the tub and turning the water on, escaping to the outside, climbing on everything, he really keeps us on our toes!
He lost another top, front tooth, so he has a really big gap now, its to cute!
He is doing great in school, he loves being there and loves his teachers. He is getting so much better about keeping his hands to himself around the other kids. But even when he does mess with them, they are so cute about it. They don't want us to get onto Brady about anything, they are all like a bunch of mother hens :) Its so nice to be able to send him to school and know that he is very well taken care of and that the people there truly love him and want whats best for him.
I got a really good deal on a very nice communication device, so were just waiting for it to come in now. I hope that this will be something that he can use here at home, hes doing so well at school, with his devices. I think that the new communication abilities have opened up so many new doors for him, he feels like a big boy. The best part of all of it, is that he doesn't get as frustrated and much less aggressive, than ever before. I have always tried to put myself in his shoes. I know it must be so hard to know what you want to say, but lack the ability to communicate that. I think the hardest two parts of Angelman Syndrome have been seizures and the lack of communication skills. I'm praying that in the near future, we will be able to overcome both of these hurdles and really move onto bigger and better things. The sky is the limit for our little guy, I know that he is capable of so much more than anyone realises. He continues to surprise me everyday.
Anyways, guess I better get some sleep. I have a Make A Wish meeting tomorrow, so wish me luck! |
posted by angelwings
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1:18 AM
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Aw, I'm happy to hear Brady is doing well.
Good luck at the Make A Wish meeting tomorrow.
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| About Brady |
Read Brady's Story Here
I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day.
My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.
See my complete profile
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Aw, I'm happy to hear Brady is doing well.
Good luck at the Make A Wish meeting tomorrow.