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Thursday, February 05, 2009 |
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Well, its after 7am here, haven't been to sleep yet. Brady is still going strong, so not sure we will even go to sleep today. On the bright side, I was able to get tons done here in the house all night. I'm loving my new door from this room, to the laundry room. I was able to get all my laundry done, go through my old clothes and rearrange my entire closet, linens and clothes. Who knows, I might actually be able to get the entire house clean, all at the same time, for a change :)
We have a new respite worker coming in a few hours, hopefully I can stay awake for her. I did think about taking a nap while she watches Brady though,lol.
Anyways not much happening here. Brady is still a bit sick, I think hes just finishing up with this bug that we have all had. He has only manage to go to school 1day this week, not sure if he will make it tomorrow or not.
He has been pretty wound up tonight, you wouldn't know he was sick. He is loving the new freedom of being able to turn doorknobs now. He managed to escape into the bathroom while I was putting clothes up last night. I found him sitting in a tub with water, in his pajamas. So I guess now we have to learn to not only shut all the doors, but have to lock them as well. Guess we will be changing out the knobs that don't have locks on them.
Well guess I better see what my monkey is up to, hes playing in his play room, and is way to quiet.
Will post more later. |
posted by angelwings
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7:18 AM
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| About Brady |
Read Brady's Story Here
I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day.
My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.
See my complete profile
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Interactive Seizure Diary |
This
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Cure Angelman Syndrome |
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The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.
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