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Monday, February 11, 2008 |
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| Well we just got in today from a 3 day hospital stay. Friday night Brady had a seizure,high fever and was acting very strange.. So I took him to the ER,where he had three more drop seizures on the way in. They done tests and he did have pneumonia,but it was a bit better than before. His white blood count was only 13,000,but since all the nurses knew him,they recognized that he wasnt acting like our typical Brady. So they got us admitted sometime after midnight and started IV fluids and antibiotics. By 4am they repeated the white blood count and it had jumped up to 21,000. So we spent three days on IV,doing breathing treatments and getting stuck all the time. Brady finally started drinking Sunday night and started coming back to himself,after being totally lethargic all weekend. We didnt really determine what caused all the problems,but they suspect it was the pneumonia. So were home now,and Brady is doing great,so glad to be home. He is eating like a pig,but his drinking is slowly returning. We are all totally drained at this point. Poor Peyton had the hardest time being away from all of us,I guess he really does love us,lol. I felt so bad about being away from him,but he had to go back to school today. Anyways all is well now,so say a prayer that it stays that way. The doc put Brady on an antibiotic here at home,as well as breathing treatments. Hes being aggressive with treatment since Bradys VNS surgery is coming up soon. Well thats about it for me,will post more later. |
posted by angelwings
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11:04 PM
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| About Brady |
Read Brady's Story Here
I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day.
My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.
See my complete profile
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Interactive Seizure Diary |
This
downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.
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Angelman
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The AS Forum was created in April
2005 and provides an easy way for family members and carers of
people with Angelman Syndrome (AS) to exchange information with each
other.
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Cure Angelman Syndrome |
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The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.
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