|
 |
|
Wednesday, February 20, 2008 |
|
| Just wanted to let everyone know that Brady is doing well,knock on wood. He of course is into everything,and has learned to use toys to climb up on things now. His eating is still improving,if thats at all possible,still cant seem to fill him up these days. His sleeping has been better the last couple of days,but still far from sleeping all night. He is sleeping at the moment,but I expect him to be up soon. We started him on Omega 3 Fish Oil recently. Its supposed to help with aggressive behaviors,sleeping,increases the seizures threshold,etc. So far I cant tell much of a difference with him,but we will see. He has been biting a lot the last 2 days,dont know whats going on with that. He has also starting hitting himself in the head,not real hard,and with the front side of his hand,I just cant figure this kiddo out sometimes. Anyway not much excitement here,with him that is. We took dad to the doc yesterday,a vein specialist. They say that we cant do much about the swelling and other issues hes having in his legs,it is long term and not curable. They gave of some things to do to treat his legs,so hopefully it will help. So while you guys are saying a prayer for Brady,please throw one out for his daddy as well. I will post more later. |
posted by angelwings
@
12:22 AM
  |
|
|
|
|
| About Brady |
Read Brady's Story Here
I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day.
My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.
See my complete profile
Home
Post
Edit |
What is Angelman Syndrome?
Its 6:30am here and we havent been to bed yet. At ...
Well we just got in today from a 3 day hospital st...
Well some of you might not know this,but Bradys su...
Well it’s been a crazy 2 weeks here!!! We started ...
Well,we spent the day at my grandmothers house tod...
Okay this is a brag,so fair warning to all readers...
Things are going good here,other than battling an ...
Just wanted to let everyone know that Brady is doi...
Just wanted to let everyone know that Brady got hi...
|
| Archives |
|
Interactive Seizure Diary |
This
downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.
|
|
Angelman
Forum & Chat |
|
The AS Forum was created in April
2005 and provides an easy way for family members and carers of
people with Angelman Syndrome (AS) to exchange information with each
other.
|
|
Cure Angelman Syndrome |
|
The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.
|
| Angelman Links |
|
| |
