Click Here to Read Brady's Story
Tuesday, November 20, 2007
Brady has had a good day today. He hasnt been manic all day,and has even been using his words some. We had to go to the hospital and have his blood drawn,for the tests the GI doc requested. The young man that stuck him first couldnt get the vein,as Brady was moving all over the place as usual. So he had to get a woman to come and draw the blood while he helped me hold Brady. But we did get it,and Brady didnt even cry. So after that I took Brady to have his hair cut,and he was moving a lot,but done really well.
Anyways thats about it for now. Will post more later.

posted by angelwings @ 11:25 PM
   0 comments
0 Comments:
 
Home        Post        Edit        Post a Comment
 


What is Angelman Syndrome?

                 

About Brady

Read Brady's Story Here   

I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day. My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.

See my complete profile

Home      Post        Edit

Well it started off as a rocky morning,but it did ...
  Well,its been a heck of a Monday morning already!!...
  Brady is doing better today. He has been awake and...
  Well its been another interesting day here today. ...
  Well,Bradys been a busy boy lately..... He started...
  Just wanted to let everyone know that we went to t...
  Well things are going good here. We see the GI doc...
  Just wanted to catch up from Halloween. Brady had ...
  Brady is getting better. Still no word on the surg...
 
 
Archives
Interactive Seizure Diary

This downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.

Angelman Forum & Chat

The AS Forum was created in April 2005 and provides an easy way for family members and carers of people with Angelman Syndrome (AS) to exchange information with each other.

Cure Angelman Syndrome

The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.

Angelman Links
Angelman Blogs
All About Epilepsy