|
 |
|
Tuesday, June 12, 2007 |
|
Bradys eating!
|
Okay,as many of you know,Brady takes lamictal,keppra and topamax for his seizures. Well he had mono last year and quit eating shortly after. He hasnt started back eating,and has been living on pediasure. He goes days at the time without eating anything at all,then only eats a couple bites. We changed some meds at Christmas,thinking it could be the topamax causing the lack of appetite,of course it was a huge mistake. He had a big seizure and his appetite didn't increase. So hes back on all the meds and doing fine with seizures,but has had no change in appetite until this week. I put him on vitamin B-6 about 4 days ago,per suggestion from a fellow Angelman parent. She explained that any child on keppra should be on B-6 for aggression. I cant see a lot changes in behavior just yet,but his eating has increased so much. He ate an entire can of yams tonight and just seemed he couldn't get enough!!! He ate some taco salad this afternoon,and hes always hated meat! Last night he ate 3 bananas and pitched a fit for more. He then ate a plate of mac and cheese for supper. So anyway hes doing really well,he went to bed with a full tummy and totally relaxed from a swim. Hes sleeping in his room,in his bed,whooo hoooo!!
I did however catch him chewing on the foam padding on the floor last night,so I guess its going to have to be replaced for his safety. Anyway of you have any good ideas on good Angelproof flooring,lol....... |
posted by angelwings
@
12:58 AM
  |
|
| 1 Comments: |
-
Way to eat Brady!!! I bet its all the swimming helping you work up a hardy appetite.
Love Debbie nd Alec
|
|
|
Home
Post
Edit |
|
|
|
|
|
| About Brady |
Read Brady's Story Here
I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day.
My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.
See my complete profile
Home
Post
Edit |
What is Angelman Syndrome?
Bradys day.
Ode to Special moms.
God Lives under the bed.
Big boy!!
Learned a new trick!
Training mom.
Bradys day.
Bradys pool skills.
Update....
Bradys bubble gum!
|
| Archives |
|
Interactive Seizure Diary |
This
downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.
|
|
Angelman
Forum & Chat |
|
The AS Forum was created in April
2005 and provides an easy way for family members and carers of
people with Angelman Syndrome (AS) to exchange information with each
other.
|
|
Cure Angelman Syndrome |
|
The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.
|
| Angelman Links |
|
| |
Way to eat Brady!!! I bet its all the swimming helping you work up a hardy appetite.
Love Debbie nd Alec