Click Here to Read Brady's Story
Thursday, June 07, 2007
Learned a new trick!
Brady learned a new trick tonight. I put him back in his room,after massive cleaning today. I took apart his bunk beds,took off the enclosed part,and he now has two separate beds to sleep on. But I did put up a gate so he cant get out,for his safety of course. Anyway,he is now standing at the door telling me off,flipping the lights on and off at a hundred mph. Not sure if hes having fun with it,or just trying to get his crazy moms attention,lol. Its strange how we are so proud of him for doing things that we would have never let our other typical son do. Everything is a new skill,and good OT,PT,or ST practice,lol. Oh well I guess we better buy stock in light bulbs,I don't think those are going to make it through the night at this rate,lol. I'm not looking for light switch covers,wish me luck!

posted by angelwings @ 12:13 AM
   0 comments
0 Comments:
 
Home        Post        Edit        Post a Comment
 


What is Angelman Syndrome?

                 

About Brady

Read Brady's Story Here   

I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day. My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.

See my complete profile

Home      Post        Edit

Training mom.
  Bradys day.
  Bradys pool skills.
  Update....
  Bradys bubble gum!
  Wrong date on last pictures.
  2007 Angelman Walk a Thon
  God Sent to Me an Angel
  Had to borrow this one from a fellow Angelman momm...
  Having fun at beach.
 
Archives
Interactive Seizure Diary

This downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.

Angelman Forum & Chat

The AS Forum was created in April 2005 and provides an easy way for family members and carers of people with Angelman Syndrome (AS) to exchange information with each other.

Cure Angelman Syndrome

The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.

Angelman Links
Angelman Blogs
All About Epilepsy