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Monday, June 04, 2007
Bradys day.
Well we had company today and they were all in the pool. Brady stood on the couch watching them out the window. He was a little sunburned from spending all day in the pool yesterday,so I really didn't feel comfortable having him out there in the heat of the day. Anyway he was pitching a fit to get in would walk with his hands flat on the wall,behind the couch,from the french door windows,to the window on the other side of the couch. He was so pitiful,but hey thats the first time that he has walked with his hands flat to the wall while side stepping,so that's a new achievement. I finally felt so bad that I took him up to maw maws,his favorite place to be. Of course the kids got back in the pool for 5 minutes after that,lol. We did put Brady in this afternoon after the sun had gone down a little bit. His dad said "hey,you ready to get in the pool?" and of course Brady started flapping and kicking and giggling. He then got down and crawled to the door to go out to the pool. Its amazing how much this kid loves water,lol. As I type hes standing there looking out the french doors at the pool,bless his heart.
Oh and as I mentioned before,Brady doesn't eat anymore,hes only drinking pediasure,but is still gaining weight. Anyway I asked him tonight didn't he want some cheese sticks and pizza to eat,well the turkey went and got me his cup for more pediasure,guess he was hoping for pizza flavored pediasure,lol. Well I'm out for now,keep you all posted on our progress.

posted by angelwings @ 7:09 PM
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What is Angelman Syndrome?

                 

About Brady

Read Brady's Story Here   

I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day. My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.

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Bradys pool skills.
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  About our day!
 
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