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Saturday, March 31, 2007 |
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Our blocks are in!!
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| Just wanted to let everyone know that our Paint a Block kits are in. I have plenty of extras right now,but they are going fast! So be sure that you contact me as soon as possible at sfore@centurytel.net if you want to purchase a block. We have several already painted and in,they look great! Our Angelman Awareness wall is coming together!!! |
posted by angelwings
@
11:22 PM
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| About Brady |
Read Brady's Story Here
I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day.
My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.
See my complete profile
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What is Angelman Syndrome?
This is an essay by Soeren Palumbo who is a senior...
Update on Paint a Block Fundraiser.
Latest Update.
Vacation photos 2/07.
Update
Update on Brady.
Brady walking the treadmill!
We are doing two fundraisers this year,the online ...
We are doing two fundraisers this year,the online ...
We are doing two fundraisers this year,the online ...
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| Archives |
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Interactive Seizure Diary |
This
downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.
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Angelman
Forum & Chat |
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The AS Forum was created in April
2005 and provides an easy way for family members and carers of
people with Angelman Syndrome (AS) to exchange information with each
other.
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Cure Angelman Syndrome |
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The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.
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| Angelman Links |
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