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Wednesday, March 21, 2007 |
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Update on Paint a Block Fundraiser.
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Just wanted let everyone involved in our Paint a Block project,for our Angelman Syndrome Awarenesss Wall,know that the blocks have been ordered and will be in very soon. So get those paint brushes ready!!
We have ordered plenty of extra blocks to sell,so those of you havent gotten your order in yet,dont worry. Just email me at sfore@centurytel.net if you want a to purchase a kit,and I will give you further instructions via email. I am going to move the deadline up to May so we do still have some time. Anyway thanks so much for all your help with this project.
Oh I also wanted to add,Brady is walking all over the place and loving it,lol. Were so excited!!! |
posted by angelwings
@
6:53 PM
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| About Brady |
Read Brady's Story Here
I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day.
My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.
See my complete profile
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What is Angelman Syndrome?
Latest Update.
Vacation photos 2/07.
Update
Update on Brady.
Brady walking the treadmill!
We are doing two fundraisers this year,the online ...
We are doing two fundraisers this year,the online ...
We are doing two fundraisers this year,the online ...
Good news!
HMMM this treadmill is good for something!
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Interactive Seizure Diary |
This
downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.
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Angelman
Forum & Chat |
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The AS Forum was created in April
2005 and provides an easy way for family members and carers of
people with Angelman Syndrome (AS) to exchange information with each
other.
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Cure Angelman Syndrome |
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The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.
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