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Sunday, March 04, 2007 |
Vacation photos 2/07.
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posted by angelwings
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10:25 PM
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1 Comments: |
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Hi there! I just came across your blog and have had a wonderful time reading through it and getting to know Brady. He's a beautiful boy! I also have an angel, her name is Hope. She turned 2 years old in January. I came across your blog while searching the blogs for "angelman syndrome" in hopes of finding different ways that parents have helped their children be the best they can be. From what I've read, Brady seems to be one of the "milder" cases with the exception of the seizures. I've always felt that Hope was a "milder" case also and really want to learn more ways to help her develop and grow as much as possible. (I, by no means, am tring to classify Brady or Hope - by milder I mean that they don't seem to have some of the more sever characteristics that I've read about) I'm not in denial that there are just going to be things that she can't or won't be able to do, but I'm always afraid of missing that chance of not working with her in a certain way or with a certain therapy toy and keeping her from doing something that maybe she would have if I had just thought of trying. Do you know what I mean? Anyway, I haven't finished reading through all of Brady's blogs, but it seems like you have a real handle on how to help him. You also seem to share the same attitude towards the disorder that my husband and I have about it. She's a blessing and there is nothing "wrong" with her, she is just exactly how God wanted her to be. As my husband says, there is something genetically "wrong" with all of us! Anyway, I won't keep babbling, but if you could email me privately, I would love for you to "get to know" Hope and hear more about Brady's development and at what age he hit each milestone, etc. Thanks so much for sharing your angel with us! Shona (shona@creativethinkinginc.com) I also just started a blog a week ago before we went on vacation the link is www.watsontribe.blogspot.com
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About Brady |
Read Brady's Story Here
I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day.
My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.
See my complete profile
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Update on Brady.
Brady walking the treadmill!
We are doing two fundraisers this year,the online ...
We are doing two fundraisers this year,the online ...
We are doing two fundraisers this year,the online ...
Good news!
HMMM this treadmill is good for something!
Bradys tonsillectomy.
Waking up my best pal! |
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Interactive Seizure Diary |
This
downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.
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Angelman
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The AS Forum was created in April
2005 and provides an easy way for family members and carers of
people with Angelman Syndrome (AS) to exchange information with each
other.
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Cure Angelman Syndrome |
The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.
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Hi there! I just came across your blog and have had a wonderful time reading through it and getting to know Brady. He's a beautiful boy! I also have an angel, her name is Hope. She turned 2 years old in January. I came across your blog while searching the blogs for "angelman syndrome" in hopes of finding different ways that parents have helped their children be the best they can be. From what I've read, Brady seems to be one of the "milder" cases with the exception of the seizures. I've always felt that Hope was a "milder" case also and really want to learn more ways to help her develop and grow as much as possible. (I, by no means, am tring to classify Brady or Hope - by milder I mean that they don't seem to have some of the more sever characteristics that I've read about) I'm not in denial that there are just going to be things that she can't or won't be able to do, but I'm always afraid of missing that chance of not working with her in a certain way or with a certain therapy toy and keeping her from doing something that maybe she would have if I had just thought of trying. Do you know what I mean? Anyway, I haven't finished reading through all of Brady's blogs, but it seems like you have a real handle on how to help him. You also seem to share the same attitude towards the disorder that my husband and I have about it. She's a blessing and there is nothing "wrong" with her, she is just exactly how God wanted her to be. As my husband says, there is something genetically "wrong" with all of us! Anyway, I won't keep babbling, but if you could email me privately, I would love for you to "get to know" Hope and hear more about Brady's development and at what age he hit each milestone, etc. Thanks so much for sharing your angel with us! Shona (shona@creativethinkinginc.com) I also just started a blog a week ago before we went on vacation the link is www.watsontribe.blogspot.com