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Wednesday, February 21, 2007 |
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Update
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Just wanted to let everyone know that things are going well here. Brady is finally over being sick and into everything these days. Hes taking 20+ independant steps,whooo hooo!! He is getting new 4inch thick pads for his therapy room floor. Were going to put them down and put up rails around them so that he can walk around and fall safely. The idea is to teach him how to fall in a safe way so that he doesnt get a busted nose. It should be loads of fun,lol
The fundraising is going well were up to $136 on the firstgiving site and were are about to order a total of 24 blocks for our Angelman Awareness Wall. We still have others that are going to be ordering so this is only the beginning hopefully.
Well just wanted to keep you all up to date on whats been going on here lately. I will keep the updates coming as they happen.Hugs to all. |
posted by angelwings
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1:21 AM
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| About Brady |
Read Brady's Story Here
I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day.
My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.
See my complete profile
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What is Angelman Syndrome?
Update on Brady.
Brady walking the treadmill!
We are doing two fundraisers this year,the online ...
We are doing two fundraisers this year,the online ...
We are doing two fundraisers this year,the online ...
Good news!
HMMM this treadmill is good for something!
Bradys tonsillectomy.
Waking up my best pal!
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Interactive Seizure Diary |
This
downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.
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Angelman
Forum & Chat |
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The AS Forum was created in April
2005 and provides an easy way for family members and carers of
people with Angelman Syndrome (AS) to exchange information with each
other.
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Cure Angelman Syndrome |
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The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.
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