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Wednesday, September 21, 2005 |
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Brady Got His Wish!!
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| Well,Brady finally got his wish!His hot tub arrived yesterday.He has been a little fish ever since.He loves it.We had a great time yesterday.Our good friend Maryanne,the wish coordinator with Make a Wish,came .We visited with her and had a little party with cake.Then the hot tub was delivered.We got some of the water in it and Brady had to get in before it was even heated up.Now he crawls to the door of the room where the hot tub is and cries to get in to the hot tub.He is so excited.I do have some pictures that I will be posting,of him eating his cake,and of him in the hot tub.Thanks Make a Wish and Maryanne,you guys are great!Enjoy |
posted by angelwings
@
10:18 PM
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What is Angelman Syndrome?
| About Brady |
Read Brady's Story Here
I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day.
My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.
See my complete profile
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Brady took Steps
Another Seizure!!
I'm Gonna get that Camera!!!
Why are you Buggin me?
Here I Come Mom
Beautiful Smile!
Another Seizure!!
Seizure/babbling
Another Seizure Today!!
Another Seizure!!
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Interactive Seizure Diary |
This
downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.
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Angelman
Forum & Chat |
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The AS Forum was created in April
2005 and provides an easy way for family members and carers of
people with Angelman Syndrome (AS) to exchange information with each
other.
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Cure Angelman Syndrome |
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The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.
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