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Wednesday, September 21, 2005
Brady Got His Wish!!
Well,Brady finally got his wish!His hot tub arrived yesterday.He has been a little fish ever since.He loves it.We had a great time yesterday.Our good friend Maryanne,the wish coordinator with Make a Wish,came .We visited with her and had a little party with cake.Then the hot tub was delivered.We got some of the water in it and Brady had to get in before it was even heated up.Now he crawls to the door of the room where the hot tub is and cries to get in to the hot tub.He is so excited.I do have some pictures that I will be posting,of him eating his cake,and of him in the hot tub.Thanks Make a Wish and Maryanne,you guys are great!Enjoy

posted by angelwings @ 10:18 PM
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What is Angelman Syndrome?

                 

About Brady

Read Brady's Story Here   

I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day. My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.

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Brady took Steps
  Another Seizure!!
  I'm Gonna get that Camera!!!
  Why are you Buggin me?
  Here I Come Mom
  Beautiful Smile!
  Another Seizure!!
  Seizure/babbling
  Another Seizure Today!!
  Another Seizure!!
 
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This downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.

Angelman Forum & Chat

The AS Forum was created in April 2005 and provides an easy way for family members and carers of people with Angelman Syndrome (AS) to exchange information with each other.

Cure Angelman Syndrome

The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.

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