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Sunday, September 04, 2005
Another Seizure!!
Just wanted to let you all know that Brady had another seizure a couple of days ago.It only lasted about 30 seconds and was almost so mild that we didnt even notice it.But the good news is that he is still babbling all the time.He says da da alot and I have even heard him saying bu bu.I have been trying to teach him to say bu ba to call Peyton.I think he is trying.Anyway just wanted to let you all know whats going on with him.

posted by angelwings @ 9:24 PM   0 comments
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What is Angelman Syndrome?

                 

About Brady

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I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day. My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.

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This downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.
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The AS Forum was created in April 2005 and provides an easy way for family members and carers of people with Angelman Syndrome (AS) to exchange information with each other.
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The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.
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