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Sunday, August 11, 2013
Brady update
Okay so its been a while since I posted...sorry about that. Things are good here. Its been a rough few weeks as Brady has been recovering from having his VNS battery replaced. He has been miserable from the stitches but seems to be getting better everyday. Had some miscommunications about his settings so had to make some corrections, but hopefully all is well now. He just made it past his two year seizure free anniversary so we are beyond thrilled about this. Its hard to believe that this time two years ago, he was just recovering from a coma! I thank God everyday or our many blessings, as there are so many. To have all of my family here with us and healthy, is a blessing like no other. Brady is making great progress these days. He has more words, communication is amazing, and he uses his iPad better than even I can,lol. The coolest part is that he can now use his iPad to say "I love you" and he does this quite often :) Anyway, it seems that all of my batteries are nearly dead tonight, so I have to sign off. I promise to update more tomorrow and I have lots of pics to share with you guys! Again, sorry for getting preoccupied and not posting more. Lots of big things coming up, so I promise to post ;) Have a blessed night!


posted by angelwings @ 12:49 AM
   1 comments
1 Comments:
  • At 11:37 AM, Blogger Huub Klein said…

    Hi all, so good to hear that you are all doing fine. Love from us in The Netherlands.

     
 
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What is Angelman Syndrome?

                 

About Brady

Read Brady's Story Here   

I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day. My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.

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Interactive Seizure Diary

This downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.

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The AS Forum was created in April 2005 and provides an easy way for family members and carers of people with Angelman Syndrome (AS) to exchange information with each other.

Cure Angelman Syndrome

The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.

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