Angelman Syndrome, Life as an Angel

Sunday, March 22, 2009

First let me update you guys on things here. Brady is doing great, getting smarter by the day! Its getting hard for us to stay ahead of him now, he always seems to outsmart us,lol. He is doing great in school, but still having some issues with keeping his hands to himself :0 They got his new swing up last week, he loves it! When I came to pick him up, a first grade girl, met me in the hall, telling me that they had Brady's new swing up and that he loved it so much. I told her that they would have to take turns pushing him in the swing.
Brady is finally learning to venture off from us, when we have him outside. He is loving his new found freedom. He runs around the yard, jumps on the trampoline and plays in the sandbox. But he has to come back and sit with us every 5 minutes or so, I guess its just reassurance for him. His brother really enjoys having someone to play outside with. He really wants us to leave Brady outside with him, but we haven't got up the nerve to do that, not sure we ever will.
Its been a wild week here. My hubby had to have minor surgery on Tuesday, he has 6 kidney stones, one was blocking the tube. He goes back to the doc on Tuesday, and will most likely have another surgery the following Tuesday.
Peyton ended up with a slight fever the day of his dads surgery, so Maw Maw ended up with two busy boys that day, while I was at the hospital with their dad.
I have been working on getting sponsors together for our Angelman Walk in Mobile Al, its been a job so far, but is going well. So mark your calendars guys, Angelman Walk, Mobile Al, May 16!! Were going to have good food, good fellowship and lots of activities for both adults and kids. If you need more info, feel free to contact me at sfore@centurytel.net
I wont go into detail, but we have had the most amazing day today. We met the kindest couple, I think we've ever met. I hope and pray that we made an impact on them, just as they made an impact on us. Just remember, when you think that the world is full of uncaring, selfish people, this is not true! Always try to see the good in those that surround you. Never take anything for granted and take every opportunity to be inspired. Remember to pay it forward every chance you get, whether it be big or small, because one day, it will come back to you. When you take the chance to bless someones life, you will be blessed in the end.
So anyways, enough of my rambling. I will keep you guys posted on things here. I'm sure that I will have some Brady stories to share very soon :)

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What is Angelman Syndrome?

About Brady

Read Brady's Story Here

I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day. My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.

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