Angelman Syndrome, Life as an Angel

Tuesday, March 10, 2009

Guess you guys seen the pics from the petting zoo. Brady had a good time, but mostly enjoyed socializing with everyone. The cow that was mooing totally cracked him up though. He liked the baby chicks, but didn't know how to be gentle and nearly decapitated one of them,lol. He also liked the turkey when it made noises, he laughed so hard. When it was time to pet the baby goats and cow, he wasn't very interested, was far more interested in playing with the young men who were holding them,lol. As for the catfish in a bucket of water, wellllllllll, you can guess what he wanted to do there. But overall, he had a good time, was very tired before we were done. He did walk the entire time we were there, its so nice having him finally walking.
Its been a busy weekend here. We were cleaning up the camper, getting ready for our AEA trip. Brady was so helpful. He gave himself about 4 baths, with his clothes on, flooded the kitchen floor twice, flipped the air conditioner on and off, and even managed to lock me out, when I ran to get air freshener from the car. Peyton and I begged Brady, through the window, to unlock the door, and turn the water off. I had to use the shop vac, to suck up all the water in the floor! So, we spent the entire weekend, Brady proofing the camper. we had to put a cover over the kitchen faucet, put a locking door knob, to keep him out of the bathroom, we put a lock at the top of the closet door and had to build a box over the air conditioner controls. Last summer Brady didn't know how to turn faucet knobs or door knobs, so things are going to be different this year. I'm just glad that we figured all this out before we left for our trip next month. Hopefully we have some things Brady proofed now,so maybe it will be a bit easier. He has been such a busy boy these days. He has stopped sleeping since Thursday night, and has been silly manic ever since. He is destructive and thinks it is just hilarious when he tears something up. I know it sounds strange, but a part of me his just thankful that he is able to do the things he does, no matter how tired I get, or how busy he keeps us. One thing is for sure, we never get bored here at our house.
Anyways, not much else happening here. Will post more later.

posted by angelwings @ 12:28 AM 1 comments

1 Comments:

At 5:45 AM, Elijah said…

Hey Bray sound like a really great time at the petting zoo -good job both you and the animals are all in one piece

Bye
Darren - Elijah's Dad

Home Post Edit Post a Comment

What is Angelman Syndrome?

About Brady

Read Brady's Story Here

I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day. My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.

See my complete profile

Home Post Edit

Brady at petting zoo. (1st school trip)
Brady in the news.
Just wanted to let you guys know that Brady is doi...
Hey guys! Just wanted to post a quick update, sinc...
Just wanted to let everyone know that Brady is doi...
Just time for a quick update. Brady is very sick a...
Where did my teeth go!
Well, things are going great here! Brady has been ...
Well I went for my first Wish today, it was great!...