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Sunday, February 22, 2009 |
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Just time for a quick update. Brady is very sick at the moment. He suddenly started throwing up Saturday morning, then the other tummy problems hit shortly after. By lunch he was so sick, that we needed to go to the hospital for tests. While we were there, he had a small seizure, so we opted to take him to the ER to be checked out. The doc on call, was wonderful, very knowledgeable about AS. He diagnosed Brady with Gastroenteritis. Brady wasn't walking at all yesterday, was very lethargic, and was crying with his tummy. He has seemed some better today, even walked a little bit, but seems to be getting sicker tonight. I had to give him phenogran again, since he started gagging like he was going to vomit. His diapers are having to be changed about every 10 minutes, but there isn't as much blood in them. His eyes have black circles under them and his skin is a very pale white. He is mostly laying around, we can tell that he is miserable. When Brady isn't smiling, there is something bad wrong, and we get worried. Were waiting on the stool culture to come back, but they tell us it will probably be the end of the week before we know anything. If this continues for much longer, we are going to have to do something, regardless of whether or not the cultures come back.
Anyway, I will keep everyone posted on how hes doing. But I have to get back to him for now.. Say a prayer for our little guy. |
posted by angelwings
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10:29 PM
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| About Brady |
Read Brady's Story Here
I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day.
My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.
See my complete profile
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Interactive Seizure Diary |
This
downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.
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Angelman
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The AS Forum was created in April
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other.
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Cure Angelman Syndrome |
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The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.
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