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Tuesday, July 24, 2007
Update
Just wanted to let everyone know that Brady is doing fine. I'm pretty sure that I seen some small seizure activity while he was sleeping last night,yes he was actually sleeping. Of course I got no sleep,for worrying about him,but that's ok. I feel better knowing that my little man is being looked after in case something bad happens. But he is doing well,things dont seem to be affecting him much. He is still a happy sweet little boy.
Anyway,Brady's new favorite skill is turning the water on and off to the tub. For some reason he always goes for the hot water,naturally..... So that's one more thing that we have to be watching out for. These days,it seems that there aren't to many things that Brady boy cant do. I'm not complaining at all,its like one big world of therapy,lol.
He just brought me the tv remote and fussed at me til I turned the tv on for him,thats new!! Hes never expressed interest in the tv,other than to push all the buttons and reprogram it. Sure would be nice if he would sit still long enough to watch tv,lol.
Anyway I will keep ya posted on anything new.

posted by angelwings @ 10:40 AM   3 comments
3 Comments:

  • At 11:31 PM, Anonymous Anonymous said…

    Hey Steph

    I am glad your little man is better.I will be in and out of touch for a few days as we move, but you all remain in my prayers.

    Love Deb

     

  • At 9:19 AM, Anonymous Anonymous said…

    Hey Stephanie! I hope Brady is still doing good. He is so precious!

    Love,
    Megan

     

  • At 9:53 AM, Blogger Jaime said…

    I just happened to come across your page when I was googling Angelman syndrome....cause thats what they(doctors) think my cousin has...and she is 8....I just wanted to say that I really like your page...it lets me know there are other people out there going through the same things that we are....my cousin use to have seizures all the time when she was little and they gave her pills and she has had one in a year or more now...so hopefully Brady is doing well today...and just know that you can email me if ever you want to
    connorgirl@hotmail.com

     
 
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What is Angelman Syndrome?

                 

About Brady

Read Brady's Story Here   

I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day. My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.

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  Bradys hospital trip.
  Brady fed me supper!
 
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Interactive Seizure Diary

This downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.
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The AS Forum was created in April 2005 and provides an easy way for family members and carers of people with Angelman Syndrome (AS) to exchange information with each other.
Cure Angelman Syndrome

The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.
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