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Monday, July 23, 2007
Brady had a seizure.
Just wanted to let everyone know that Brady had a seizure this morning at about 3am. He was laying on my chest and had just fallen asleep. He jerked his arm backward and hit the desk really hard,then jerked again,knocking the mp3 player to the floor,it was myoclonic seizures. Then shortly after that his mouth started twitching and his body went somewhat limp. I tried to wake him,but he only opened his eyes for them to roll to the left hand side. He seized for about a minute or so,then came out and was laughing not to much later. I gave him a cup and he kept dropping it,but finally did regain composure and was able to drink. He is now sitting in the floor playing with his favorite toy. Hopefully he will be ok and we wont have any other seizures this morning. I will be watching him very closely,not sure when or if I will ever make it to sleep. I'm just so thankful that he was laying on my chest so that I knew he was seizing. I don't know if I will ever be able to sleep again!!!!!

posted by angelwings @ 3:38 AM
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About Brady

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I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day. My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.

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This downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.

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The AS Forum was created in April 2005 and provides an easy way for family members and carers of people with Angelman Syndrome (AS) to exchange information with each other.

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The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.

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