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Monday, July 09, 2007 |
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Bradys doing well.
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Just wanted to let everyone know that Brady is doing well,no more drop seizures. He had a good day today. He got up early this morning and is actually sleeping now,hope he stays that way for the rest of the night.
He poured his cereal in the floor tonight,and didn't eat it of course. But he did pick it up one by one and put it on the table. We had to clap for each piece he picked up,but were proud of him for cleaning up his mess,even if he didn't eat.
He ate some spaghetti yesterday,and some cheese cake,but hasn't eaten anything today. He has a GI appt on Wed of this week,so hopefully we can get some answers the reason for his hunger strikes. Anyway I will post more after the appt. |
posted by angelwings
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11:30 PM
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Hey Steph
Glad to hear Brady is better.I would have loved to see you all clapping for each little bit.
Deb
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Glad Brady is feeling better! I too would have loved to hear you all clap for every bite!! LOL!! That goes on a lot in our house too...clapping for the most insane things...over and over and over again!! So much JOY!
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What is Angelman Syndrome?
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Read Brady's Story Here
I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day.
My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.
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Hey Steph
Glad to hear Brady is better.I would have loved to see you all clapping for each little bit.
Deb