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Thursday, December 28, 2006 |
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Its fundraiser time again!!
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| Just wanted to let you all know that its ASF fundraising time again.We raised appx $1500 last year,whoo hooo! But we want to make that even better this year by doubling that, I have faith with everyone's help,we can do this!!Be sure and keep a check here on Bradys blog for progress on the fundraising.Big hugs to you all.And we want to thank everyone in advance for all your support last year and the years to come!! Also for those you interested in going to the Walk A Thon in Birmingham Al,you can go to www.angelman.org and register there. The Walk will be held May 19,2007. If you need more info please email me at sfore@centurytel.net We couldnt do this without you all,you guys rock! |
posted by angelwings
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4:28 AM
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| About Brady |
Read Brady's Story Here
I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day.
My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.
See my complete profile
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What is Angelman Syndrome?
Strep throat!
Bradys seizure.
Bradys surgery.
My big escape!!!!!
Brady
Twas Sometime Before Christmas.
Update on Brady
He's on it again.
A day with Brady!
Update
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| Archives |
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Interactive Seizure Diary |
This
downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.
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Angelman
Forum & Chat |
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The AS Forum was created in April
2005 and provides an easy way for family members and carers of
people with Angelman Syndrome (AS) to exchange information with each
other.
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Cure Angelman Syndrome |
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The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.
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| Angelman Links |
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