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Friday, November 10, 2006
He's on it again.
Well its 2am and Brady is wired again,so I thought I would update his blog while I wait for him to sleep.So far tonight he has been into everything,as usual.But he is especially proud of himself for mastering the latch on the gate to the kitchen.He stands up and reaches over the gate to unlatch it,then sits down opens and crawls through.So I thought I would teach him that I could outdo him tonight.I tied the gate shut with a belt and latched it.Well it only took about a minute to unlatch it and take the belt off.So I guess I have been defeated again.I went to ask my hubby how to latch it to keep Brady out,and when I came back after a minute of so,Brady had climbed up on the table and poured out his brothers milk all over the place and was splashing around in it like a little fish.Then he decided to climb up on the couch and fall off backward,he nearly gave me a heart attack.Thank goodness were getting a helmet for him soon.Last but not least,he just ate a bug,go figure!
On a better note,he is trying really hard to walk these days.He will take as many as 10 or so independent steps at the time.Until tonight he had no protective response at all,but for the first time,he let go of the gate he was holding onto,bent over and put his hands down on the floor to catch himself,good job Brady!Hes learning also how to sit down on his bottom when he feels like hes going to fall.So hopefully we want have as many busted heads as I had feared.
Brady seems to be really alert and hyper these days.He has been coming off of some of his meds,and is down from 6 daily,to 2 daily.So I guess hes not as sedated as before and is really trying out his wings now.The bad thing is that even though we have seen good points since coming off the med,we have seen many bad points too.His behavior is becoming an issue.He is becoming more aggressive,not really in a mean way,but playful and he does not mind as well as he did beforehand.I guess maybe things will get better once he gets used to the change.
Anyway I will try to keep you all posted.

posted by angelwings @ 2:26 AM
   1 comments
1 Comments:
  • At 3:04 PM, Anonymous Anonymous said…

    Hey Steph

    I love Bradys Blog..I hope he gets used to his meds soon and back to being a calmer gentler Brady.

    Debbie and Alec

     
 
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What is Angelman Syndrome?

                 

About Brady

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I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day. My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.

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A day with Brady!
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  Bradys trip to the hospital.
  Vacation photos.
  Trip to Shriner's.
  One Year!
  Beating up and sliming dad!
 
 
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