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Wednesday, July 20, 2005
Losing our Speech Therapist
Okay just had to post this.We just found out that we are losing Bradys speech therapist.She is going to be moving.We are so sad.She has been such a blessing for our family and has gotten Brady doing things I wasnt sure he ever would.She has taught us that even if he doesnt ever speak,he can still communicate.She has been not only a therapist,but a friend to our family and we are going to miss her so much.We recently lost a great physical therapist also,because Brady turned 3yrs old and aged out of early intervention.I suppose we should get used to this,but I dont know that we ever will!So Lisa and Joey I have to say thank you so much for all your hard work and words of encouragment. We are going to miss you guys.

posted by angelwings @ 6:58 PM
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What is Angelman Syndrome?

                 

About Brady

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I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day. My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.

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This downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.

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The AS Forum was created in April 2005 and provides an easy way for family members and carers of people with Angelman Syndrome (AS) to exchange information with each other.

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The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.

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