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Thursday, July 14, 2005 |
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Not Sleeping
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| Well its just at 5:00 am here.I am up so figured it was a good time to post.I awoke to this happy little giggle coming from the end of my bed sometime between 2 and 3 this morning,yes of course it was little Brady.He had climbed out of bed and made his way to my room.He was so proud of himself.So I put him in our bed but he laughed and kicked and climbed us,so I took him back after a while to his bed.I lay and watched him on the monitor as he climbed on big brother and just laughed and giggled.He climbed out of bed a couple more times so I went and put him back.Well then he decides that he will take out the camera at the foot of the bed,and turns it off.So I go and turn it on and try to watch him again,by now its just before 5am,even Craig is a wake,he has to go to work soon.So I get back up and decide that Brady isnt going back to sleep,cant find a papi.So im just hanging out here in the living room with him,trying to give Craig that last little bit of sleep.The bad thing is that I took some tylenol cold nighttime medicine for a sore throat so I am very sleepy and just want to go to bed,but oh well.I do hope that Brady doesnt start this staying up all night,it will affect his seizures,therapies and not to mention dont know if mom and dad can take it.See no sleep is a famous Angelman trait,it is very common.Anyway just pray for us,were going to need it.Just another day in our life.Brady is fine though hes very jolly and is wide awake.Hes just playing with his toys.Its a good thing big brother is a hard sleeper huh. |
posted by angelwings
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5:05 AM
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What is Angelman Syndrome?
| About Brady |
Read Brady's Story Here
I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day.
My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.
See my complete profile
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Interactive Seizure Diary |
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The AS Forum was created in April
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Cure Angelman Syndrome |
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The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.
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