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Monday, July 04, 2005 |
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Seizure free for 3 Weeks!
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| Hey I havent posted in a while so I figured I should update everyone on what all is happening with Brady.He is doing very well.Tomorrow will be 3wks seizure free,Im holding my breath.He is on a new medicine called Keppra,with the others that he was already on.He doesnt seem to be having any side effects so far.Tonight we done fireworks for the fourth and he just loved them.He always been scared before,but tonight he just cackled everytime one went off.The benefit ride went really well a couple of weekends also,he loved the attention.Anyway just thought I would update everyone.I will keep you all posted on the seizures. |
posted by angelwings
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11:30 PM
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| About Brady |
Read Brady's Story Here
I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day.
My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.
See my complete profile
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What is Angelman Syndrome?
Love my New Ball Pit!
Oops, Forgot to Lay Down!
Had to Give it Up!
Yep, Another Seizure!
Let Me See If I can...?
Not gettin out Mom!
Splish Splash!
What's this Stuff on my Head?
Have a Ball Brother!
This is tooo cool Mom!!
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| Archives |
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Interactive Seizure Diary |
This
downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.
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Angelman
Forum & Chat |
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The AS Forum was created in April
2005 and provides an easy way for family members and carers of
people with Angelman Syndrome (AS) to exchange information with each
other.
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Cure Angelman Syndrome |
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The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.
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| Angelman Links |
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