Click Here to Read Brady's Story
Monday, June 23, 2014

Hello everyone! Just got a reminder about our blog tonight and thought I would post :) Things are great here! We have been seizure free since our last coma in July 2011!!! Such a huge milestone!! We are coming up on our three year anniversary if being seizure free...never thought I would be able to say something like that.brady is down to only two seizure meds and his VNS and he continues to rock life. So many milestones met just in the last couple of years, that it's impossible to post about them all. He can now feed himself independently, navigates his Ipad better than even I can, has about 26 words, and communication is amazing. He is a happy healthy boy. We just got back from camping, so he is catching up on his sleep. We had a blast meeting new people and meeting up with some of our favorite Angelman peeps. We are getting ready for our friends, an angelman family, from canada to come visit with us next week...super excited. We are going to a 4th of July party where there will be 7 other Angels...can't wait for all of the chaotic fun that we will have. Quick story from today. Brady's dad was chatting with me and he spelled out "do you think Brady wants to go to maw maws house"...Brady jumped us shaking his head yes and led his daddy to the door,lol. That little stinker knew what his daddy was spelling. I don't know why I'm ever amazing at anything this child does. I swear he is so smart and understands everything. Anyway, life is great. We are living it to the fullest and enjoying all of the healthy happy times together. Hope all of you guys are doing well. Feel free to shoot us a comment and let us know what's going on in your lives ;) Peace out until the next time!

posted by angelwings @ 11:48 PM
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What is Angelman Syndrome?

                 

About Brady

Read Brady's Story Here   

I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day. My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.

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Interactive Seizure Diary

This downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.

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The AS Forum was created in April 2005 and provides an easy way for family members and carers of people with Angelman Syndrome (AS) to exchange information with each other.

Cure Angelman Syndrome

The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.

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