Click Here to Read Brady's Story
Wednesday, April 12, 2006
Update on Brady
I haven't really posted a lot on things that are going on here,so here goes. Brady is doing very well,still no seizures,whoo hoo! He is doing very well,still taking some steps,just to scared to do it without his daddy and I close by. We seen a new doc yesterday,a specialist in genetic disorders,it went pretty well. We knew most things that were discussed,but it was so nice to talk to someone who knew about AS.We did however find out that Brady wasn't tested for the any particular type of AS,he only had the Methylation Test.This tells us that he does have AS,jut not what kind.We still believe and the geneticist believes that he does have a deletion.We will keep the new doc,so if we have any questions about AS,we can just give him a buzz.

Anyway the fundraiser is almost up to $1500 now,so we are very pleased!We might just double our goal!!!

As far as everything else goes,its the same ole stuff,working,doing therapies,doctors visits,etc. We are going Friday to pick up Bradys new convaid stroller,so were pretty excited about that.Its just in time for the Angelman Walk A Thon next month.We are looking really foward to that,there will be lots of Angels there. Well enough rambling,just wanted to update everyone on whats going on here.Talk to you all soon.

posted by angelwings @ 8:09 PM
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What is Angelman Syndrome?

                 

About Brady

Read Brady's Story Here   

I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day. My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.

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Update on Fundraiser
  Cheese Fries with Sour Cream
  Me & Brother in the Dirt
  Favorite Hobby
  Update on Brady
  Angelman Fundraiser in Gantt
  Update on Fundrasing for the ASF
  Hello! My name is Alyssa
  Hi my name is Savannah
  My name is Macie
 
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The AS Forum was created in April 2005 and provides an easy way for family members and carers of people with Angelman Syndrome (AS) to exchange information with each other.

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The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.

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