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Wednesday, March 29, 2006
Update on Brady
I havent really updated you all on Bradys progress in a while,and I am getting into trouble with lots of friends about this,lol.So anyway Brady is doing very well,no seizures and lots of progress.He is jabbering our heads off,da da ,bu ba,ma ma,and every other letter of the alphabet!He is making all kinds of new sounds with this mouth,tongue and lips.
He is also walking back and forth between me and craig.He hasnt got up the nerve yet to do it without us around,but im sure its coming real soon.I will keep you all posted.

posted by angelwings @ 9:44 AM   0 comments
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What is Angelman Syndrome?

                 

About Brady

Read Brady's Story Here   

I am 11yrs old and I have Angelman Syndrome. I may have this syndrome, but I dont let it hold me back. I love life and live it to the fullest every single day. My mom says that our research organization, Foundation for Angelman Syndrome Therapeutics, is working really hard on a treatment or even a cure for me and my friends. I am thankful to have 25 words but I look forward to the day that I can carry on long conversations and talk so much that everybody has to ask me to please be quiet for a few minutes :) Anyway, mom says Im awesome and super funny and I have to agree,lol.

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This downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.
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The AS Forum was created in April 2005 and provides an easy way for family members and carers of people with Angelman Syndrome (AS) to exchange information with each other.
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The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.
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