|
 |
|
|
Warning: The stories that I am about to present are based on actual events; viewer discretion is advised. . . This weekend was a wild one in our house. We had pictures Saturday morning and were due at a Birthday party around 2pm that day. I ended up staying home with Brady because he was very tired after pictures and needed a nap. Anyway, that evening we had a poo-911 in which we had no wetwipes in the house, so we made a quick trip to the store to pick up some. Dad and Peyton went in the store, while I sat in the car with Brady. Naturally, Peyton suckered his dad into buying goodies while at the store. So we get home, change the diaper, which adds that De La Poo scent to the house. Meanwhile, remember that Peyton picked up goodies at the store. . . So he decides that its time to show me what his goodies are. He lays this foil looking piece of paper on the floor and tells me to "just watch". I'm watching this paper for about 30seconds when I decide to go over and investigate. Peyton drags me back and says "no mom, its going to blow up". He was right, this piece of paper did expand and blow up, right before our eyes. After its done, Peyton then explains that its a "fart bomb"; I am just thrilled to be now adding to the De La Poo scent that already radiates around the room. So I'm thinking, well it wont be so bad, how bad can this thing smell; it was BADDDDDDDD!!! So by now, we have made our way into the kitchen and have started cooking supper. Since the previous scents are so bad, we decide to light a candle, hoping to make the smell go away more quickly. So we place the lit candle on top of the refrigerator, thinking that it would be safe there, since it was out of Brady's reach. Meanwhile, I get out a bag of bread crumbs, which I will be using in my Broccoli Casserole that I am cooking. Since I didn't want Brady to get the bread crumbs, I placed those on top of the refrigerator as well, then I went about my cooking. In a minute or so, Craig is standing by the sink and starts saying "oh, oh, oh" I'm just looking at him wondering what is going on. I kept asking, "what, what is it, what" and he finally exclaims "fire!" Since I am cooking, I begin looking at the stove-top, at the oven, down the counter-tops, but no fire. I'm still saying "what, where, what are you talking about" when I glance upward and see the fire coming from the top of the refrigerator. Since I am to short to reach, I had to wait for Craig to get water and pour over the flames. Thank goodness it only burned my bread crumbs, a cd, and a couple of papers! So I begin wiping the brown water from the side of the fridge, while Peyton is standing on the counter, wiping the top of the fridge. We get that mess cleaned up and I go back to cooking. Brady then pours a bag of cheese puffs in the floor, tries with all his might to stick his hands in the boiling water on the stove, and eventually grabs himself a handful of Broccoli Casserole (which has no bread crumbs, because they were burned). I ended up locking the half-door to the boys room and putting them in the room while I finished cooking. I was exhausted by the time that I fixed plates and sat down at the table for supper, but I had to laugh. Just thinking of the chaos and entertainment that our lives bring, made me smile. "It may be a crazy life, but its my life". . . |
posted by angelwings
@
6:43 AM
  |
|
|
|
|
|
Well Brady its been a busy week in the Fore house this week. Brady started sleeping in his room Sunday night for the first time in four years, and he is doing great! He sleeps in his bed, next to his brothers bed, and I am getting a full nights rest for the first time in years. Brady also started back to school this week and we are attempting to try full days. So far he is doing really well, but is a bit tired by the end of the day. As for seizures, (knock on wood) Brady is doing great! We started Zonegran at the first part of the year, and it appears to be working. Things really are going well here atm. Brady is so alert these days, moreso than I have ever seen before. He is following commands, answering yes and no questions appropriately, and surprising us with new skills every day. I'm not sure what the real definition of normal is, but I must say that our lives at this point, are as close to normal as its ever going to get,lol. On a sad note, we lost a very special Angelman mom this week. I am not sure what the cause of death is, but it was unexpected and sudden. She was a very special person who has helped so many others in her life. So please keep her daughter and family in your prayers, as this is a very difficult time for them. Just wanted to post a quick update, as I don't do that often these days. Gotta run get the boys at school now. Will post later and hope to have pics; the boys are scheduled for Saturday if the storm holds off. |
posted by angelwings
@
1:51 PM
  |
|
|
|
|
| About Brady |
Read Brady's Story Here
I am a happy, healthy 9yr old little boy. I have Angelman Syndrome which makes me even more special. I bring joy to all those who meet me. Just because I am unable to speak, does not mean that I dont have lots to say; I make that very clear to mommy and daddy everyday!
See my complete profile
Home
Post
Edit |
What is Angelman Syndrome?
 
Okay, just time for one more post! I was sifting t...
Well just had a moment and thought I would update....
Well we are back!! Lots of exciting things happeni...
Hello everyone!!!! First let me just apologize for...
Hello All!!!!
Now that life has slowed down a bit,...
Well its been a little while since we updated, so ...
Well things are going great here!! brady is back t...
Hey guys! Im proud to report that things have been...
Quick Update
I know that some people will not understand why I ... |
| Archives |
January 2005
February 2005
April 2005
May 2005
June 2005
July 2005
August 2005
September 2005
October 2005
November 2005
December 2005
January 2006
February 2006
March 2006
April 2006
May 2006
June 2006
July 2006
August 2006
September 2006
October 2006
November 2006
December 2006
January 2007
February 2007
March 2007
April 2007
May 2007
June 2007
July 2007
August 2007
September 2007
October 2007
November 2007
December 2007
January 2008
February 2008
March 2008
April 2008
May 2008
June 2008
July 2008
August 2008
September 2008
October 2008
November 2008
December 2008
January 2009
February 2009
March 2009
April 2009
May 2009
June 2009
July 2009
December 2009
January 2010
February 2010
March 2010
April 2010
May 2010
July 2010
August 2010
July 2011
August 2011
October 2011
November 2011
December 2011
January 2012 |
|
Big Happy Tent |
Big Happy Tent is a homegrown non-profit organization started by Marcel Cairo and his family. Our mission is to take Angelman kids and their families camping, surround them with nature, water, music and fun, and let them soak in the wonder and joys of life.
|
Interactive Seizure Diary |
This
downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.
|
|
Angelman Syndrome Foundation |
The
Angelman Syndrome Foundation is a national organization of families,
caregivers and professionals who care about those with Angelman
Syndrome. It is also a member organization of the International
Angelman Syndrome Organization (IASO).
|
|
Angelman
Forum & Chat |
|
The AS Forum was created in April
2005 and provides an easy way for family members and carers of
people with Angelman Syndrome (AS) to exchange information with each
other.
|
|
Cure Angelman Syndrome |
|
The Foundation for Angelman Syndrome Therapeutics (or FAST) is an organization of families and professionals dedicated to finding a cure for Angelman Syndrome and related disorders through the funding of an aggressive research agenda, education, and advocacy.
|
| Angelman Links |
|
| |