Just wanted to let you all know that things are looking good here.Brady has had mono and a broken leg all summer,but he is on the mend now.He has his cast off and is taking steps,and is actually trying to talk.He actually said "I love my buba".And this weekend he said "want mama".We are just thrilled with his progress,but he is talking our heads off now,lol.He is getting to be such a big boy now!Anyway just wanted to let you all know that hes doing so much better.I will keep you all posted on his progress.
Well I just had to tell you what Brady is up too,hes feeling much better for sure. Anyway he has now learned to climb up on the back of the couch,scale the banister and escape into the kitchen,a lot of good the gate is doing us now, lol.So I guess once again,the couch will be relocated to a safer location,like outside maybe,lol,no kidding.We even threatened taking all the furniture out and sitting on pillows,the only problem is that I might not be able to get up out of the floor, lol.Oh well. Anyway,he did learn another new trick as well.He learned to hold his nose,and not only hold his nose,but blow while hes holding it.I told him today he sounds like hes trying to cough up a fur ball,lol!!But he just thinks that it is the coolest sound hes ever made before,and I think its pretty darn cool too,lol!Hey and at least he can tell us if something stinks now,lol. Last but not least,I have to brag on big brother too! Peyton said something that just melted my heart tonight.Peyton starts back to school tomorrow,hes a big 2nd grader now!Anyway we were talking tonight and he asked if Brady was going to school with him this year.So I told Peyton no,maybe next year Brady would,that I wasnt sure.So he said"oh good mommy,but you will have to leave Bradys stroller with me you know,because when I go and get him from class I will have to have the stroller,he is real heavy you know." My heart just melted,he loves his little brother so much,and was actually excited that he would get to do something so big for his little brother! Anyway just wanted to share with you all.Brady is doing better by the way,he is still running fever every afternoon and the spots in his mouth are back at the moment.He loves his pediasure so hopefully with that and him eating some it will keep up his weight.Thank you all so much for your concern for Brady and all your wonderful emails this past month,
I am a happy healthy 5yr old little boy. I have Angelman Syndrome which makes me even more special. I bring joy to all those who meet me. Just because I am unable to speak, does not mean that I dont have lots to say. I make that very clear to mommy and daddy everyday!
Big Happy Tent is a homegrown non-profit organization started by Marcel Cairo and his family. Our mission is to take Angelman kids and their families camping, surround them with nature, water, music and fun, and let them soak in the wonder and joys of life.
This
downloadable Interactive Seizure Diary helps you track your seizure activity and medication routine. You can also record doctor appointments and notes about how you are feeling. Before a doctor appointment, print the information and share it with your physician.
The
Angelman Syndrome Foundation is a national organization of families,
caregivers and professionals who care about those with Angelman
Syndrome. It is also a member organization of the International
Angelman Syndrome Organization (IASO).
The AS Forum was created in April
2005 and provides an easy way for family members and carers of
people with Angelman Syndrome (AS) to exchange information with each
other.
